Over the weekend I went from a part time parent to a full time parent. Layne came home and things are going well. He is on oxygen still so that has become a challenge we usually just leave him in one room all day so we do not have to move the tank around (basically because I have to have DH do it).
Wyatt is on the lowest setting of oxygen thus far. I breast fed him for the first time yesterday and he did really well.
Haylee Jo had a lot of fluid on her lungs and they are giving her a daily dose of lasics. She looks and acts way better I didn't realize that she felt as bad as she did.
Monday, May 21, 2012
Part time to full time
Monday, May 14, 2012
Birth Announcement
Appreciate
Last night I was thinking about my life while holding Wyatt. I believe God wanted to teach me a lesson on appreciating life and not to take things for granted.
I was infertile so that I would appreciate being pregnant.
The babies are in the Nicu so that I appreciate every second I have with them. The two things above made me appreciate my first mothers day that much more.
I have not posted anything in awhile so here is a quick run down.
Wyatt is back on the ventilator because he had surgery on his eyes last Wednesday. He has stage 3 retinopathy of prematurity with disease. If it would get to stage 4 he would be blind. Hopefully the surgery will help. He is still doing good with digesting milk.
Haylee is taking a bottle every other feed. She is doing pretty well with breathing. She only has heart rate and breathing drops every once in a while.
Layne is taking a bottle every feed now and they just turned his oxygen down today (hopefully he is going to be off oxygen with in a couple weeks but I'm not going to count on it). After I feed him his 9am bottle we talk and sing and he smiles so big (I think he is going to be a morning person).
Oh I should add that everyone is out of their incubators and in cribs. Pretty exciting huh.
Monday, April 23, 2012
got milk?
Sunday, April 15, 2012
Things I have learned
First and foremost, I am glad to know that my hubby is proud of me. We are not big into sentiments but on the way home (from the hospital) a couple days ago he said he was proud of me, I had a really bad day and he thought he needed to tell me. We are a team and I hope it stays this way for a long time/forever.
That I think I'm a good mom (not the best but good), the NICU is a dark place. My babies have been there for 7 weeks now and I have only seen some of the parents twice or not at all. One baby is addicted to drugs (it cries all the time) and another didn't have a name for a week then once it had a name the parents gave it up (social workers have to come in and approve anything that has to be done to the baby). It is a sad place but that is where I get to hold my babies so I am happy about that part of it.
I know who my real friends/family are. I can not believe some people are so low to talk bad about you behind your back especially when you are depressed about something or are having hard times.
When I watch The Little Couple I know almost everything Dr. Jen is talking about while she is at work.
People are so kind. Some people that I am acquaintances with are praying for my children and sending us cards. So wonderful.
The March of Dimes is a great charitable organization. One that I do not think gets enough publicity.
Health insurance (or any kind of insurance for that matter) is not there to help you, it is there to give you a headache when you need it the most.
A couple days or a couple ounces is a lot to a preemie. Things are completely different from week to week even hour to hour.
I'm sure there is more but I can not think of it right now but I can always add to this list later.
Saturday, April 14, 2012
Easter babies
| Wyatt 33 weeks gestation (6 weeks old) |
| Haylee Jo |
| Layne |
| Our first family picture |
| Wyatt, Layne & Haylee Jo |
Monday, April 2, 2012
Tears
Wyatt is doing so so much better. Mainly because they figured out what is wrong with him, his thyroid did not develop so he has to take meds for it for the rest of his life (that is fine with me, he is alive). He is going to be my big guy even though he weighs the same as Layne he just looks bigger.
Haylee, it really has been a roller coaster ride with her lately. I had to go thru my first resuscitation with Wyatt and it was horrible for me, so I had a little talk with the other two that mommy could not take that phone call anymore. Little miss is going to be my rebellious one because they have had to resuscitate her three times now. The second time was Saturday night and while bagging her, her lungs would not inflate with air like they wanted. Once they got her stable they took an xray, she had a small leak like Wyatt did. It will close with time. She did really well for the rest of the day. Well last night she decided to stop breathing again they bagged her and this time it took them along time to get her breathing. They are running all kinds of tests to figure out what is going on. She does have a murmur (PDA open) like the boys had but they say there would be other signs that they look for before they say that is the reason. So today they are going to do a head ultrasound to look at her brain. It is aggravating to me that all the tests they ran so far are coming out okay and they say the reason she is doing this is because she is premature. If it is in fact the only reason they can come up with it will just take her growing and getting older to fix the problem. What if she does it again? I am just sick to my stomach writing about it, the good thing is I have not been there when they have these little spells (it is usually in the middle of the night or right after I leave). I assume I would be a mess and would just be no help at all but I could be really calm until it was all over, who knows. I will try to update later with the results to the ultrasound.
Layne had surgery last week on his PDA. They told me this was a pretty simple and common surgery done in the NICU. It was still hard, surgery on the heart is not just an everyday thing that I have to go thru especially on a 4 week old (31 weeks gestation). It only took them 20 minutes to do it and he was off the ventilator within 24 hours and was breathing better than Wyatt and Haylee. The incision is sore but that is expected. He cried the entire time they were taking him to the OR, we assumed it was because he was being separated from his brother and sister (if that is the case it will make things challenging when they are growing up).
One of the doctors made the comment that they really want to see them as the grow up because we all believe they are telepathic. When one sets off their alarm the other two follow suit (they drive the nurses crazy). They are all on high humidity air and the boys weigh 2lbs 11oz and Haylee is 2lbs 9oz.
| Wyatt with his little dog Doby 3-21-12 |
| Haylee Jo with Huey the cat 3-21-12 |
| Layne with his dog Spot 3-21-12 |
